Category Archives: Uncategorized

Becoming Alex

I’m a little bit in love with Alex right now. I mean… if it’s possible… I love him even more than I did before. That’s ok for me to say, right? We love our children to the moon and back … Continue reading

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To the parent of a newly undiagnosed child…

I remember the start of our journey of ‘What…? Why…?’ with Alex very clearly, though I don’t like to think of it often. It makes me go cold. Want to cry. You never think you ask for much when you … Continue reading

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Guest Post from Alex…

Hellooo! It’s me :-) It’s Mother’s Day today isn’t it? I know because Mummy keeps mentioning it. She says she does that because my big sister forgot it when she was 10 months old despite having remembered Father’s Day when … Continue reading

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Having a right to play?

Everyone needs systems and processes. If only to have some words for your actions to push against. Just to see what might happen, what could change. Which brings me neatly to… holiday playschemes… and the intractability of county and district … Continue reading

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This is the house that…

Well, we haven’t got yet. As Alex grows up… and gets bigger and taller and heavier… and we get older, frailer, tireder… there will come that point where… well, he will have to move out. And at that point I … Continue reading

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Moments…

The day is full of sunshine. It is warm. Our car is full. Full mainly with Alex’s stuff… huge bed… wheelchair… 3 wheeler… seat to strap him into when we go out… and in among that is crammed everything else. … Continue reading

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Trolley? What trolley?

Some of you may remember when I waxed lyrical here about the simple pleasures of being able to take Alex supermarket shopping. On the face of it, I appreciate, it may seem odd getting so excited about taking him food … Continue reading

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