I was talking to Emma about a piece I was writing for Undiagnosed Day.
‘Does it mention me? You know, you always tell me how well I’m doing?’
I laughed, and told her she was coping well with the whole ‘Alex thing’ but that this piece was more about how not having a diagnosis could be both a good and a bad thing, so it didn’t really talk about any of us in great detail.
‘Well, could I do a bit for it?’
‘Yes, but I might just put it up separately, if that’s ok?’
So this is Emma’s guest blog:
‘My bit’ by Emma
Being the sister of an diagnosed(*) child can be a bit weird because when people stop and say to mum ‘Why isn’t he walking?’ it makes me feel uncomfortable because you’re just torn between saying ‘If he could walk, he would’, or feeling quite embarrassed because he can’t do the stuff you can do.
But a good thing is that you can play with them for longer, generally mess about with them for longer.
It’s true that diagnosed siblings will take up more of your parents attention space, but you have to remember that when your parents do spend time with you they’ll be doing stuff with you that they could never do with your sibling.
When your the sibling of a diagnosed child it can be stressful at times, but overall it’s brilliant.
I cried when I read this (and not just because I was desperate to correct her punctuation). It’s interesting what she notices in our day to day life with Alex, what sits in her head. But I’m glad she’s able to articulate how she feels so clearly, to write it all down.
*she means undiagnosed – here, and later on – but you knew that.